Friday, May 18, 2012

We are home from the hospital.  Andrew had surgery and the surgeon said it could not have been any better of a surgery.  He got everything, he is fairly sure it is Histiocytosis, but told us to wait for the official pathology report (probably Wed/Thurs).

Andrew is doing well.  His body does not like Demoral, but it did a good job taking the pain away.  Hard for a momma to see him point to the sad face crying picture on the 1-10 pain scale.  He is up in bed and I am hoping he will sleep well through the night.

We told him on the way home about how dangerous the tumor was and that he could have possibly died from it if we had not had it removed.  Not much of a consolation for missing swim lessons this summer, but he seemed to understand.  He is not allowed to do much exercise for 6 weeks.  Sounds like he might get a lot of video game playing this summer.

A huge weight is off of our shoulders, but there is still an unknown path ahead of us.

We will be getting the pathology report next week (probably from the Oncology doctor).  If the pathology report confirms the diagnosis of Histiocytosis, than he will probably have to do a full body bone scan and an organ scan to check for other tumors.  This would be a disease that he could have to watch for the rest of his life.

We check back with the surgeon the week after that.  The surgeon said that it looked like Histiocytosis to him.  He said that a lot of these kids get one tumor removed and he never sees them again.  Other kids have to come back multiple times.

1 comment:

Keileen said...

whew! Sounds like all is going well. Glad to see everyone came out all right. love you all, auntie kei